This is a terrible syndrome characterized by whole body pain as its most obvious feature, but, at its worst, becomes associated with a variety of symptoms that wreck your quality of life. These range from crushing fatigue, headaches, brain fog, insomnia, irritable bowel syndrome or its symptoms, tingling/numbness without organic explanation, and terrible pain following even the most mild activity.
The challenge with this terrible syndrome is the lack of recognition and lack of treatment options available. This pain is invisible; no one around you, sometimes even your loved ones, will fully understand. Doctors may tell you all the tests are normal and “it’s all in your head”. At worst, some physicians won’t treat you or refer you elsewhere.